Rare Cancer Support Forum

my brother was recently diagnosed with chromophobe renal cell carcinoma with sarcomatoid differentiation, we are looking for anyone with this cancer who is a survivor or currently diagnosed, would love to touch base and hear anything you might know or ideas for treatments, we are running out of time and desperate for anything to give us hope :(

My husband was diagnosed on 4/24/14 with Sarcomatoid Renal Cell Carcinoma of the right kidney with metastatic disease in both lungs. Bill only had a cough for a week and then received this diagnosis. First treatment was Sutent for 28 days and immediately after treatment stopped Bill's cough returned and his breathing became labored. Within a week, he was started on chemo with a regiment of gemzar or gemcidibine and doxorubicin every two weeks. His breathing improved almost immediately and he just had his 5th treatment. We just take one day at a time...some good days and some difficult days. We would really like to hear what treatments and successes people have had with this type of cancer.