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Adenoid Cystic Carcinoma of the lacrimal glad

Posted:
Sat Jul 25, 2009 10:21 pm
by pb5
I have it and would like to know if there is anybody else out there who may also have it...
Re: Adenoid Cystic Carcinoma of the lacrimal glad

Posted:
Thu Feb 04, 2010 9:12 am
by DedeOliver
Yes, me - i had it twelve years ago in the left lacrimal gland. How are you doing? Please reply.
Re: Adenoid Cystic Carcinoma of the lacrimal glad

Posted:
Sun Nov 21, 2010 9:20 am
by janeshiva
Hi
My mum has just been diagnosed with it. Really need help and advice - we're in the North west of England (Blackburn) trying to get referred to Christie's Manchester - can anybody advise on this?
Also, how to get onto the private adenoid cystic carcinoma forum?
many thanks
Jane
Re: Adenoid Cystic Carcinoma of the lacrimal glad

Posted:
Sun Jun 05, 2011 11:43 am
by lisaniris
Hi Jane
My mum was diagnosed with ACC on 23rd Dec 2010, we live in Wigan. we go to Christies my mum is on a trial drug because they couldnt operate or offer her any other treatment, im guessing by now, your mum has been tranfered too Christies, how are things going, would like to compare notes if thats ok.
Lisa..x