Rare Cancer Support Forum

Hi there everyone.My name is Laurie and I lost my very best friend/partner to Malignant Para Aortic Paraganglioma 5 weeks ago after a year long struggle with this very very rare cancer.He eventually succumbed to Malignant Pleural Effusion due to metastatic lymphatic disease which caused build up of fluid in lungs due to poor lymphatic drainage.This was the most painful journey I have been on.I cared for Bri at home and helped him make decisions re treatment and diagnostic tests because I am a Staff Nurse in the NHS in Scotland and had a good grounding of cancer treatments but have increased that knowledge immensely since Bri was diagnosed,so if I can offer any advice or assistance to anyone,I will do my utmost to help because I know how awful it is to be struggling in the dark with a diagnosis of cancer.Bri was a lovely lovely guy and I live in hope that we will meet again some day tho I miss him like crazy just now.We developed such closeness and discussed EVERYTHING about his being ill,dying,our fears-everything and I feel honoured that I was able to support this man whom I adored at this most difficult time.
May Bri Rest in Peace
With love to all on this site

Laurie >>>----------

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